Monday, November 24, 2025

Woman Diagnosed with Cancer Just Six Days After Falling Ill on Vacation

Woman Diagnosed with Cancer Just Six Days After Falling Ill on Vacation

A Rare Survivor's Journey

A retired nurse who was diagnosed with pancreatic cancer says she feels “incredibly lucky” to be a rare survivor of the disease, which has a five per cent survival rate long term. Suzanne Ford, 67, was on holiday in Nice, France, in September 2023, when she began feeling slightly unwell. She and her friends had been “eating, drinking, making merry, having a great time” on their trip, and though she’d felt generally well throughout, she began feeling a little queasy in the final days of the holiday, something she thought may be “over-indulgence”. However, when she came home to York, her symptoms began getting worse, and she noticed a change in the colour of her poo before developing a full-body itch.

“I am an ex-nurse, so that kind of alerted me that something might not be quite right, but I hadn’t a clue what was going on,” she said.

According to the NHS, pancreatic cancer may not have any symptoms, or they may be hard to spot. Symptoms can include jaundice, itchy skin, darker urine and poo than usual, loss of appetite, tiredness, diarrhoea or constipation, stomach pain and nausea. Suzanne went to her GP, who conducted some blood tests, and she returned to her nursing job. Just six days after experiencing her first symptom, she was booked in for a CT scan, which confirmed she had pancreatic cancer.

When Suzanne was diagnosed on October 3 2023, she was “devastated”. “I knew the futility of people who’ve been diagnosed late with pancreatic cancer in accessing treatment that could be life-saving,” she said. “So I knew that there could be a really poor outcome for myself.”

Indeed, according to Pancreatic Cancer UK, pancreatic cancer is the fifth biggest cancer killer in the UK. Despite it being the 10th most common cancer, it has the lowest survival of all common cancers, with five-year survival less than 7 per cent, as most people – 80 per cent – are diagnosed at stage three or four, when the cancer has spread. Doctors believed Suzanne’s cancer was stage two, and that it had had some localised spread within her pancreatic duct and her bile duct. Her gallbladder had become blocked by the tumour, so she had an intermediate stent put in to alleviate the effects of the blockage – at which point she felt “quite gloomy, because of the potential prospect of getting to treatment”.

“My husband and family did too,” she added. “They were all devastated. I had friends who had lost loved ones to pancreatic cancer, so I knew what I was dealing with, potentially.”

However, Suzanne was deemed to be in an operable state. According to Pancreatic Cancer UK, just one in 10 people with pancreatic cancer will receive potentially curative surgery – meaning Suzanne was very lucky to have been diagnosed early enough for treatment. On November 20 2023, she had “life-saving surgery” – an eight or nine-hour operation called a pancreaticoduodenectomy (PPPD), in which they effectively “replumb your insides”, removing part of the pancreas, the first part of the small bowel, the gallbladder and part of the bile duct before joining the tail of the pancreas to the small bowel. After the surgery, the pathology found that it was stage three, but with no local spread. Thankfully, Suzanne made a “very, very good recovery”. “Part of that might have been that I had been keeping myself fit and healthy before all this started, so that stood me in good stead, but I was looked after very well, and I was incredibly lucky that I didn’t develop any complications,” she said.

Within nine days, Suzanne was out of hospital, and had around two months’ recovery from her surgery before beginning chemotherapy for another eight months. “In my circumstance, the fact that my gallbladder was blocked and I was scanned so early on, although I had relatively mild symptoms, it saved my life,” Suzanne reflected. “If it had been left, it would have become inoperable, and I would have been another one of the statistics.” Suzanne felt “incredibly lucky” that her GP acted quickly in getting her the tests and scans she needed and contacting the necessary specialists to get her a diagnosis at the earliest possible stage, and she knows all too well how rare her circumstances are.

Her experience has made her particularly passionate about supporting the work of Professor George Hanna and his team at Imperial College who, with a £1.1 million investment from Pancreatic Cancer UK, are developing a world-first breath test for the disease that could be used in GP surgeries. Now, the test is at a stage where the team are able to conduct a large UK-wide clinical trial, and it is hoped that if successful, it could improve the prognosis of those diagnosed with pancreatic cancer.

Main Symptoms of Pancreatic Cancer

Symptoms of pancreatic cancer can include:

  • the whites of your eyes or your skin turn yellow (jaundice), and you may also have itchy skin, darker pee and paler poo than usual
  • loss of appetite or losing weight without trying to
  • feeling tired or having no energy
  • a high temperature, or feeling hot or shivery
  • Other symptoms can affect your digestion, such as:
  • feeling or being sick
  • diarrhoea or constipation, or other changes in your poo
  • pain at the top part of your tummy and your back, which may feel worse when you're eating or lying down and better when you lean forward
  • symptoms of indigestion, such as feeling bloated

Suzanne said: “I think this is going to be a fantastic tool for GPs, because all these people who go with these vague symptoms again and again… For those patients who are at a suspected cancer risk, they will be able to do a breath test. The belief is that they’ll have results within three days, and then there’ll be a quick referral through for a CT scan, which will be definitive in seeing whether somebody looks like they’ve got pancreatic cancer or not. The difference that will make is it means that the percentage of people that are picked up early will rise, and those who (are diagnosed) will have a much better survival rate because they can get to treatment much earlier, hopefully.”

Anna Jewell, director of support, research & influencing at Pancreatic Cancer UK, said: “Suzanne’s story is proof that it is possible to live well after pancreatic cancer and enjoy all the wonderful things life has to offer, like precious time with her grandchildren. Tragically, too few people are currently diagnosed early enough for life-saving treatment because detecting the disease in its earliest stages is a huge challenge for doctors. Thousands of people with unknown symptoms are now helping to validate the breath test, and it will be several years before we know the outcome. But if the scientists are successful, and the test is then adopted by the NHS, the impact on early detection could be revolutionary. It could pave the way to thousands more people a year surviving the deadliest common cancer. The development of promising new tools like the breath test, and others, offers real, tangible hope for the future. To make that future possible we need to see a commitment from government for greater, consistent research investment included in the upcoming national cancer plan.”

MS Medicaid patients struggle to access weight loss drugs

MS Medicaid patients struggle to access weight loss drugs

The Rise of GLP-1s and Their Impact on Medicaid Coverage

April Hines, a 46-year-old from Mississippi, has spent much of her life battling obesity. However, in recent years, she has made significant progress, shedding over 200 pounds and improving her overall health. Her journey is largely attributed to Trulicity, a drug belonging to a new class of weight loss medications known as GLP-1s. These drugs have become a focal point for many individuals struggling with obesity, especially those covered by Medicaid.

Mississippi's Medicaid program took a bold step in 2023 by including GLP-1s in its coverage for individuals aged 12 and older. This decision was notable because only 13 states cover these drugs for Medicaid recipients, and Mississippi’s Medicaid program typically offers limited benefits. Despite this, the uptake of these medications has been slower than expected, with just 2% of eligible adults receiving a prescription by December 2024.

Challenges in Accessing GLP-1s

The slow adoption of GLP-1s in Mississippi has been influenced by several factors. National drug shortages, a complex prior authorization process, and a lack of marketing have all contributed to the low usage rate. William Rosenblatt, a family doctor in Columbus who treats Hines, expressed disappointment that so few people are benefiting from these drugs. He emphasized that GLP-1s address the root causes of many health issues, making them a valuable tool in managing chronic conditions.

However, the future of GLP-1s in Medicaid coverage is uncertain. Federal funding cuts, stemming from a recent tax-and-spending bill signed by President Donald Trump, could lead to reduced coverage. The Congressional Budget Office estimates that the law will cut Medicaid spending by $911 billion over a decade. This financial pressure may force states to reconsider expanding benefits, particularly for costly medications like GLP-1s, which can cost around $1,000 per month.

The Cost-Benefit Dilemma

Despite their high cost, GLP-1s have shown promise in treating obesity and related health conditions. These drugs, originally developed for Type 2 diabetes, have gained attention for their effectiveness in weight loss and reducing obesity-related complications. However, states remain hesitant to expand coverage due to the long-term nature of the health benefits. For example, the reduction in heart attacks or strokes may not be evident for years, and the financial benefits might accrue to other insurers rather than Medicaid itself.

North Carolina recently dropped its coverage of GLP-1s, citing their high cost. This decision highlights the challenges states face in balancing the immediate costs of these drugs with potential long-term savings. The Trump administration has also faced criticism for its stance on GLP-1s, with Health and Human Services Secretary Robert F. Kennedy Jr. downplaying their necessity and emphasizing diet and exercise instead.

Federal Policy Shifts

In contrast, the Biden administration proposed covering weight loss drugs under Medicare and Medicaid to combat obesity as a public health crisis. However, the Trump administration revoked this proposal, stating that the programs would not cover GLP-1 drugs for weight loss. Despite this, there have been rumors of a potential five-year pilot program for Medicare and Medicaid to cover these drugs, although no details have been released.

The Trump administration has also included GLP-1 drugs such as Ozempic, Wegovy, and Rybelsus on its list of medicines subject to price negotiations under Medicare Part D. The results of these negotiations are expected this fall, potentially impacting the affordability of these drugs for patients.

Limited Coverage and Patient Experiences

Most private insurers do not cover GLP-1s for weight loss, making them unaffordable for many patients. In Mississippi, the first 15 months of coverage saw only about 2,900 Medicaid enrollees starting treatment. Nearly 90% of these patients were female, and many had comorbidities such as high blood pressure and high cholesterol.

The analysis also revealed that most users lived in the southern, central, or northern parts of Mississippi, rather than the Mississippi Delta, where obesity rates are highest. About 40% of adults in Mississippi are obese, placing the state just one percentage point behind West Virginia.

Medicaid's Perspective

Mississippi Medicaid spokesman Matt Westerfield noted that the state spent $12 million in the first 15 months, providing the drugs to 2,200 adult members. While utilization has been below projections, Westerfield emphasized that treatment decisions are up to patients and their doctors. The state has been working to raise awareness among healthcare providers, but further efforts are needed.

Rosenblatt, who works for Baptist Medical Group, highlighted the importance of these drugs in his practice. He has seen patients lose significant weight and reduce their need for other medications. However, he pointed out that the state does not pay doctors to counsel patients on necessary dietary changes when prescribing GLP-1s, which may discourage some physicians from using them.

Future Outlook

Despite the challenges, the potential benefits of GLP-1s remain clear. A study published in the New England Journal of Medicine found that participants receiving GLP-1 drugs experienced more significant and sustained weight loss compared to those on a placebo. Other studies have shown that these drugs can help lower high blood pressure and reduce the risk of heart attacks or strokes.

As the debate over Medicaid coverage continues, the impact of GLP-1s on public health remains a critical issue. With ongoing policy shifts and financial constraints, the future of these medications in Medicaid coverage remains uncertain, but their potential to improve lives cannot be overlooked.

Boy's Rare Condition Stuns Doctors After Groundbreaking Gene Therapy

Boy's Rare Condition Stuns Doctors After Groundbreaking Gene Therapy

A three-year-old boy has astounded doctors with his progress after becoming the first person in the world with his devastating disease to receive a ground-breaking gene therapy. Oliver Chu has a rare, inherited condition called Hunter syndrome - or MPSII - which causes progressive damage to the body and brain. In the most severe cases, patients with the disease usually die before the age of 20. The effects are sometimes described as a type of childhood dementia.

Due to a faulty gene, before the treatment Oliver was unable to produce an enzyme crucial for keeping cells healthy. In a world first, medical staff in Manchester have tried to halt the disease by altering Oliver's cells using gene therapy. Prof Simon Jones, who is co-leading the trial tells the My healthy of life: "I've been waiting 20 years to see a boy like Ollie doing as well as he is, and it's just so exciting."

At the centre of this remarkable story is Oliver - the first of five boys around the world to receive the treatment - and the Chu family, from California, who have put their faith in the medical team at Royal Manchester Children's Hospital. A year after starting the treatment, Oliver now appears to be developing normally. "Every time we talk about it I want to cry because it's just so amazing," says his mother Jingru.

The My healthy of life has followed Oliver's story for more than a year - including how scientists in the UK first developed the pioneering gene therapy and how the medical trial they are conducting almost didn't get off the ground due to lack of funds.

Stem cell removal - December 2024

We first meet Oliver and his dad Ricky in December 2024 at the clinical research facility at Royal Manchester Children's Hospital. It's a big day. Since being diagnosed with Hunter syndrome in April, Oliver's life - like that of his elder brother, Skyler, who also has the condition - has been dominated by hospital visits. Skyler had shown some late development in speech and coordination, but this had initially been put down to being born during Covid.

Ricky tells me his sons' diagnosis came as a complete shock. "When you find out about Hunter syndrome, the first thing the doctor tells you is 'Don't go on the internet and look it up because you'll find the worst cases and you'll be very, very disheartened'. But, like anybody, you look it up and you're like, 'Oh my goodness, is this what's going to happen to both my sons?'"

Children are born apparently healthy, but around the age of two they start to show symptoms of the disease. These vary and can include changes to physical features, stiffness of the limbs and short stature. It can cause damage throughout the body, including to the heart, liver, bones and joints and in the most serious cases can lead to severe mental impairment and progressive neurological decline. Hunter syndrome almost always occurs in boys. It's extremely rare, affecting one in 100,000 male births in the world.

Until now, the only medicine available for Hunter syndrome was Elaprase, which costs around £300,000 per patient, per year and can slow the physical effects of the disease. The drug is unable to cross the blood-brain barrier and so does not help with cognitive symptoms. But today, Oliver is being hooked up to a machine and having some of his cells removed - the first crucial step in trying to halt his genetic disorder in this one-off treatment.

"His blood is being passed through a fancy machine that is collecting a specific type of cell called stem cells which will be sent to a lab to be modified and then given back to him," Dr Claire Horgan, consultant paediatric haematologist explains.

Oliver's cells are tweaked

Oliver's cells are carefully packaged and sent to a laboratory at Great Ormond Street Hospital (GOSH) in London. In Hunter syndrome, a genetic error means that cells are missing the instructions for making an enzyme, iduronate-2-sulfatase (IDS), essential for breaking down large sugar molecules which over time accumulate in tissues and organs.

Scientists insert the missing IDS gene into a virus, which has its genetic material removed so that it can't cause disease. A similar method has been used in other gene therapies, such as the treatment for another rare inherited condition, MLD. Dr Karen Buckland, from the Cell and Gene Therapy Service at GOSH, explains: "We use the machinery from the virus to insert a working copy of the faulty gene into each of the stem cells. When those go back to Oliver, they should repopulate his bone marrow and start to produce new white blood cells and each of these will hopefully start to produce the missing protein [enzyme] in his body."

There still remains the issue of how to get enough of the missing enzyme into the brain. To overcome this, the inserted gene is modified so that the enzyme it produces crosses the blood-brain barrier more efficiently.

Infusion day - February 2025

We next meet Oliver back at the clinical research facility at Royal Manchester Children's Hospital. This time he's with his mum Jingru, while Ricky has stayed in California to look after Skyler. There is a sense of anticipation as a member of the research team opens a large a metal cryopreservation tank where Oliver's gene edited stem cells are frozen, having been transported back from GOSH.

A small, clear infusion bag is removed and slowly brought to body temperature in a tray of liquid. After multiple checks, a nurse draws the clear fluid containing around 125 million gene-modified stem cells, into a syringe. Oliver is used to hospitals, but is fretful, and wriggles as the research nurse slowly injects the treatment, about a cup full, into a catheter in his chest. Jingru holds Oliver steady in her arms. After 10 minutes, the infusion is done. An hour later, a second, identical infusion is made. Oliver continues to watch cartoons on a portable screen, oblivious to the potential importance of what's just happened.

And that's it. The gene therapy is complete. It seems to be all over rather quickly, yet the ambition here is huge: to stop Oliver's progressive disease in its tracks, in a one-off treatment. After a couple of days, Oliver and Jingru fly back to California. Now the family, and the medical team must wait to see if the gene therapy has worked.

Early signs of progress - May 2025

In May, Oliver is back in Manchester for crucial tests to see if the gene therapy is working. This time the whole family is here. We meet in a park in central Manchester and it's immediately clear that things are looking good. Oliver is more mobile and inquisitive than I've seen him. Admittedly, he now has the freedom to play and is out of hospital, but he appears brighter and healthier.

Ricky is thrilled: "He's doing really well. We have seen him progressing in his speech, and mobility. In just three months he has matured." The really big news is that Oliver has been able to come off the weekly infusion of the missing enzyme. "I want to pinch myself every time I tell people that Oliver is making his own enzymes," says Jingru. "Every time we talk about it I want to cry because it's just so amazing." She tells me he is "so different" from before the treatment, is talking "a ton" and is engaging more with other children.

It is lovely to finally meet five-year-old Skyler who is very protective and caring towards his younger brother. "My wish upon the star is for Skyler, to be able to get the same treatment," says Ricky. "It feels like Oliver has got a reset in his life, and I want the same thing for Skyler, even though he's a bit older." Initially it was thought that Oliver was too old for the trial, as the treatment cannot reverse existing damage, but tests showed he was still largely unaffected. Skyler seems to take delight in the world around him, and is keen to hold my hand and chat as we walk to the park.

Ricky explains that Skyler has delayed development in speech and motor skills, but is undergoing infusion therapy, which gets the treatment to his body, but not his brain.

'Eternally grateful'

Oliver returns to Manchester every three months for a few days of follow-up tests. In late August, further checks confirm the gene therapy is working. Oliver is clearly thriving, and to date is now nine months post treatment. Prof Jones, whom Oliver calls Santa because of his white beard, is beaming: "Before the transplant Ollie didn't make any enzyme at all and now he's making hundreds of times the normal amount. But more importantly, we can see he's improving, he's learning, he's got new words and new skills and he's moving around much more easily."

However, Prof Jones exercises a degree of caution: "We need to be careful and not get carried away in the excitement of all this, but things are as good as they could be at this point in time." On the rooftop garden at the hospital, Oliver plays with his dad. "He's like a completely different child. He's running around everywhere, he won't stop talking," says Ricky. "The future for Ollie seems very bright and hopefully this means more kids will get the treatment."

In all, five boys have been signed up for the trial, from the US, Europe and Australia. None are from the UK as patients here were diagnosed too late to qualify. All the boys will be monitored for at least two years. If the trial is deemed a success, the hospital and university hope to partner with another biotech firm in order to get the treatment licensed. Prof Jones says the same gene therapy approach is being applied to other gene disorders.

There are similar treatments on trial in Manchester for MPS type 1 or Hurler syndrome and MPS type 3 or Sanfilippo syndrome. Ricky and Jingru say they are "eternally grateful" to the Manchester team for allowing Oliver to join the trial. They say they are astonished by his progress in recent months. Oliver's now producing the missing enzyme and his body and brain are healthy.

"I don't want to jinx it, but I feel like it's gone very, very well," says Ricky. "His life is no longer dominated by needles and hospital visits. His speech, agility and cognitive development have all got dramatically better. It's not just a slow, gradual curve as he gets older, it has shot up exponentially since the transplant."

The trial that almost never was

Researchers at the University of Manchester led by Prof Brian Bigger had spent more than 15 years working on creating the gene therapy for Hunter syndrome. In 2020 the university announced a partnership with a small US biotech company Avrobio, to conduct a clinical trial. But three years later the company handed back the licence to the university, following poor results from another gene therapy study and a lack of funds. The first-in-human trial, which would soon help Oliver, was in jeopardy before it had even begun.

Prof Jones: "We had to move very quickly to try to save the whole idea and find another sponsor and another source of funding." It was then that British charity, LifeArc, stepped in, providing £2.5m of funding. CEO Dr Sam Barrell said: "A huge challenge for the more than 3.5 million people in the UK living with rare conditions, is getting access to effective treatments – currently 95% of conditions have none. "The Chu family are relieved the trial didn't come to a halt and now hope Skyler may one day benefit from the same gene therapy as his brother. "I would walk to the end of the earth, backwards, forwards, upside down, barefoot, to make sure my kids have a better future," says Ricky.

"What I Wish I'd Known About Anaphylaxis" – A Patient's Story with Doctor's Insights

"What I Wish I'd Known About Anaphylaxis" – A Patient's Story with Doctor's Insights

About the Expert

Lara Gross, MD, is an allergist-immunologist at Dallas Allergy & Asthma Center, where she specializes in food allergies. She has board certifications in both internal medicine and allergy & immunology.

Key Highlights

Anaphylaxis is a life-threatening allergic reaction, but warning signs can vary widely. If you have a food allergy, experiencing a mild reaction doesn’t mean the next one won’t be serious, as one patient shares. A food allergy expert clears up epinephrine treatment misconceptions—and sheds light on a new nasal spray alternative.

Many of us quickly glance at food labels for nutritional details such as calories or fat content, but scanning for certain ingredients is a necessary task for the estimated 33 million Americans living with at least one food allergy, according to the American Pharmacists Association. “That being said, you can do all the right things and be super vigilant, and there may still be cross-contamination and things can happen,” says Lara Gross, MD, an allergist-immunologist at Dallas Allergy & Asthma Center.

The Risk of Food Labels

This risk gets even more confusing when trust in food labels gets thrown into question—such as when a recall reveals unlisted ingredients or a product has a sudden packaging change. “It’s tough and scary when one of those happens, because you think, well, what else?” Dr. Gross says. “The recalls are an issue, but so is the kind of vague labeling that is out there.”

Figuring out potential food allergens at home is one thing, but traveling can make things even trickier. Beyond potential language barriers or misunderstandings, 2024 research from the World Allergy Organization Journal, the World Health Organization (WHO) highlights how precautionary allergen labeling (“may contain”) is inconsistent around the world, calling for more regulation.

What is Anaphylaxis?

Anaphylaxis is a severe, potentially fatal allergic reaction. “And it can show up in a lot of different ways,” Dr. Gross says. You might picture someone’s throat closing up, but warning signs can range from itchy hives all over a person’s body, eye swelling, lip swelling, trouble breathing, dizziness, stomach issues, or just feeling “off.”

Continues Dr. Gross: “With milder allergies, like things out in the environment, we think of itchy eyes or sneezing. But with these anaphylactic reactions, it affects the whole body and more organs, and can have really detrimental effects.”

Additionally, anaphylaxis doesn’t look the same every time. “That’s a myth that we really try to educate about,” Dr. Gross says. A mild reaction once doesn’t guarantee the next one won’t be serious. “We don’t want people to think: ‘Oh, it’s not a big deal, it was just a little uncomfortable,'” she says. “Because the next time it could be something else—it could affect your blood pressure, it could be something more serious.”

For Chris, a 21-year-old college student, these stakes became reality while on a trip in Switzerland. Ahead, he shares how unpredictable food allergies can be—even when you think you do everything right—and how he was able to quickly treat his life-threatening anaphylaxis.

What I Learned About Anaphylaxis: You Can’t Tough It Out

As told by Chris, a college student from Ohio, to Leslie Finlay, MPA

Chris has a tree nut allergy—which can include nuts like walnuts, almonds, pecans, cashews, and more—and says he’s “always had to avoid everything related to nuts.” And it’s a risk he doesn’t take lightly. “My friends typically avoid everything related to nuts, my partner currently avoids everything related to nuts, it’s just something I’ve always dealt with.”

In spite of his best efforts, Chris says he’s previously “had small allergic reactions—it’s been something like my throat’s been itchy—but that’s been the extent.”

As Dr. Gross explains, it’s not unusual for people with severe food allergies to have these mild reactions though “we don’t really know why.” But it can make it confusing for people to understand when a reaction is serious and when to use epinephrine, the front-line treatment for severe allergic reactions.

Not Another Itchy Throat: “This Was Something Completely Different”

Chris was traveling in Switzerland and wanted to try a bar of Swiss chocolate. He first checked the label’s text using Google Translate before having a French-speaking friend take a second look. (Switzerland has four national languages, one of which is French.) “I’m always very cautious, granted those two checks were just quick,” he says. “Immediately after I took a bite, I was like, ‘This does not feel right,’ so I threw it away.” He later learned that the bar contained traces of hazelnuts.

Within seconds, Chris’s throat started tingling—a symptom he’s experienced before from nut exposure. “But this was something completely different. I just started feeling more and more nauseous; I felt like I could collapse at any moment.”

He was going into anaphylactic shock, which Johns Hopkins Medicine says is another term for anaphylaxis. “I really tried to tough it out, because normally in the past, I’d take Benadryl and I’m fine,” Chris says.

Clearing Up Common Misconceptions

Chris says he has always carried epinephrine with him in case of a severe allergic reaction, and as his symptoms worsened, he used it for the first time. “I felt pretty much immediate relief,” and Dr. Gross says it potentially saved his life.

Epinephrine, also known as adrenaline, is both a medication and a hormone, according to the Allergy & Asthma Network. Your adrenal glands produce the hormone, which helps the body regulate organ functions—and, if you’ve ever experienced the feeling of “fight or flight,” that’s from the hormone. But as a medication—such as a pre-filled auto-injector—it “reduces or reverses severe [anaphylaxis] symptoms very quickly” by opening airways, maintaining blood pressure, and more, according to the organization.

“Unfortunately, when we see mortalities from food allergies, typically it’s when there’s a delay in epinephrine,” Dr. Gross says. She says that this often stems from:

  • Not knowing if a reaction is “bad enough” to use ephinephrine.
  • Concern about having to go to the hospital after.
  • Hesitancy to inject themselves (or others) with a needle.

These are common misunderstandings, according to Dr. Gross. For starters, she encourages using it if you think there’s a need. “We run into trouble when people don’t get it when they should,” she says.

A trip to the emergency room is no longer required, either. “Ephinephrine is not harmful to give, we want people to give it,” she says. “So if someone is on the fence, going to the hospital shouldn’t be a deterrent.”

She also says there’s a new way to treat anaphylaxis that experts hope will reduce dangerous delays in care.

An Easier Way to Treat Anaphylaxis

Fear of self-injection substantially affects the use of life-saving epinephrine, according to 2025 research published in The Journal of Allergy and Clinical Immunology: In Practice. Dr. Gross explains that until recently, the only treatment available was with a needle-based auto-injector (such as an EpiPen). “Understandably, a lot of people are hesitant to give themselves or their child a shot, especially in a very stressful situation,” she says.

In 2024, the U.S. Food and Drug Administration (FDA) approved Neffy, a nasal spray version of epinephrine. Dr. Gross explains it as “the same epinephrine that’s in the auto-injectors, except instead of an injection in the thigh, it’s just a single-use spray in the nose.”

“It works quickly and it’s effective, and I’m thrilled to have a non-needle option available,” she says. “Chris is not a unique case—no fault of his—but I’m not sure that he would have done an injection.”

Chris says she’s probably right, and he’s glad he had a Neffy device with him in Switzerland. “I do have a fear of needles. Getting to that point where I’d have to stick a needle in myself—that would have taken me a long time,” he admits. “But with the Neffy, the instructions are very, very clear. I remember thinking immediately after, ‘Did I do it correctly?’ It felt too easy, but it genuinely made an immediate difference.”

Lessons Learned After Anaphylaxis

After his anaphylaxis experience, Chris admits he “was pretty annoyed with himself,” saying, “I give myself leeway, but my main takeaway is to be cautious and careful.” He highlights it’s important not to assume that food labeling regulations are the same everywhere.

For example, manufacturers in the U.S. are not legally required to disclose potential cross-contamination. Statements on product labels such as “may contain traces of” or “made in a facility that also produces” are voluntary, according to 2025 research published in Allergy, Asthma & Immunology Research. Meanwhile, other countries around the world have varying requirements in food product labeling.

Chris also urges others to be open about their allergy and medication. “I communicate with everyone I’m traveling with, whether or not I really know them or not,” he says. “As I was having my allergic reaction, the person who was with me helped a lot and did what he could. And it was literally the first day we’d met.”

Friday, November 7, 2025

Ben and Candy Carson's Struggle for Families

Ben and Candy Carson's Struggle for Families

A Lasting Partnership

Dr. Ben Carson, a renowned neurosurgeon, former Republican presidential candidate, and former U.S. Housing and Urban Development secretary, is known for his strong public presence. However, those who follow his social media accounts will notice that he is not alone in sharing the spotlight. His wife, Candy Carson, plays an equally significant role in their public life. She is credited on the cover of many of his books and has been a constant presence in his career. The Carsons have built a partnership that extends beyond personal life into professional endeavors, making it difficult to find a public-facing platform where they are apart.

This close collaboration is by design. The Carsons, who will be honored by the Sutherland Institute at its 30th anniversary awards dinner, are recognized as prominent advocates for the American family. Their work, particularly in the 2024 book "The Perilous Fight," highlights their commitment to defending the family as a core institution. The Sutherland Institute’s decision to present the Family Values Award to both Dr. and Candy Carson together reflects the deep connection between their lives and work.

Rick Larsen, president and CEO of the Sutherland Institute, explained that while the award was initially considered for Dr. Carson alone, the team realized how integral Candy Carson is to their message. “When you read their book and Candy’s book, ‘A Doctor in the House,’ you realize they’re inseparable,” Larsen said. “They’re in this together.”

A Half-Century of Partnership

Dr. Carson and Candy have been married for 50 years, and their relationship has evolved over time. In the early days of his medical career, Dr. Carson was incredibly busy as a pediatric neurosurgeon. When he became director of pediatric neurosurgery at Johns Hopkins, the division was not well-known. He spent years working to elevate its reputation, which eventually led to it being named the No. 1 pediatric neurosurgery division by U.S. News and World Report in 2008.

During this time, Candy focused on raising their children. Despite having an advanced degree from Yale and an MBA, she put her career on hold to care for their family. At the same time, she was also starting the Carsons Scholars Program, which provides college scholarships to students who excel academically and serve their communities.

Defending Family and Faith

In today’s political climate, discussing families and communities of faith can be controversial. The Sutherland Institute has long defended these institutions based on data and historical evidence. “Data shows that intact families in communities of faith tend to thrive,” Larsen said. “We’re completely aligned with Dr. Carson and Candy Carson’s new book where they make these points.”

The Carsons argue that the American family is under attack from various forces, including modern-day Marxists, socialists, and globalists. They reference W. Cleon Skousen’s 1958 book “The Naked Communist,” which outlines strategies aimed at undermining traditional values. These include discrediting the family and encouraging promiscuity and easy divorce.

The Perilous Fight

The title of the Carsons’ book, "The Perilous Fight," is inspired by a line from "The Star-Spangled Banner." They use this metaphor to describe the ongoing challenges facing the American family. Like Fort McHenry during the War of 1812, the family is under sustained attack, with enemies chipping away at its foundation for decades.

For Dr. Carson, the importance of a strong, two-parent family stems from his own childhood. His father left when he was young, and his mother worked multiple jobs to support her sons. Despite having only a grade-school education, she instilled a love of learning in her children. One of the most poignant stories involves her requiring her sons to write book reports every week, even though she could not read them herself.

Education as a Solution

Dr. Carson believes that education is key to addressing many of the challenges facing society. He argues that ignorance is a major issue, citing examples of people who lack basic knowledge. “We have to fight that,” he said. “We have to educate people so they understand the values that have made this nation prosperous.”

Through the American Cornerstone Institute, the Carsons are working to promote conservative principles and policy solutions. Their Young Patriots program aims to teach children to value faith, liberty, community, and life. “We have a wonderful story to tell with this nation,” Dr. Carson said. “It has a moral base, and as we allow all of that to recede, we’re suffering the consequences.”

Melatonin May Harm Your Heart, Experts Warn — 5 Ways to Sleep Fast Without It

Melatonin May Harm Your Heart, Experts Warn — 5 Ways to Sleep Fast Without It

Key Findings of the Study

A recent preliminary study has uncovered a potential link between long-term use of melatonin supplements and an increased risk of heart failure, as well as other serious health outcomes. The research, set to be presented at the American Heart Association’s Scientific Sessions 2025, analyzed five years of health data for 130,828 adults with insomnia. Half of these individuals had used melatonin supplements for at least a year, while the other half had not been prescribed it.

The results showed that those using melatonin long-term had a 4.6% chance of developing heart failure over five years, compared to 2.7% in the non-melatonin group. This means that melatonin users had a 90% higher risk of heart failure than those who did not take the supplement. Additionally, they were three and a half times more likely to be hospitalized for heart failure and twice as likely to die from any cause during the same period.

However, the researchers emphasized that their findings show an association, not causation. They noted that people with insomnia may already have underlying health issues that could contribute to both the need for melatonin and the risk of heart problems.

Should You Be Concerned?

Dr. Fady Hannah-Shmouni, MD FRCPC, Medical Director at Eli Health, advised caution but not panic. He explained that the study does not prove that melatonin directly causes these health issues. Instead, he pointed out that insomnia itself can lead to hormonal changes, such as increased cortisol levels, which may affect cardiac health. He also noted that the study's limitations include the lack of information on the severity of insomnia and the possibility that some participants in the non-melatonin group may have taken over-the-counter melatonin.

Despite these uncertainties, Dr. Shmouni stressed the importance of consulting a healthcare provider before starting any new supplement, including melatonin.

Tips for Falling Asleep Without Melatonin

If you're looking for alternatives to melatonin, experts suggest several strategies to improve sleep quality:

  1. Keep Your Sleep Schedule Consistent
    Maintaining a regular sleep and wake time helps regulate your circadian rhythm. This consistency ensures that your body releases the right hormones at the right times, promoting better sleep and alertness during the day.

  2. Practice a Nighttime Routine
    A calming bedtime routine signals to your body that it's time to wind down. Activities like taking a bath with Epsom salts, drinking chamomile tea, or reading can help reduce stress and prepare you for sleep. Avoid screens before bed, or use night mode settings to minimize blue light exposure.

  3. Try Relaxation Exercises
    Techniques such as deep breathing, yoga, progressive muscle relaxation, or meditation can lower cortisol levels and promote mental balance. Guided meditations or visualization exercises can also help ease you into a relaxed state.

  4. Stay Physically Active
    Regular exercise can improve sleep quality by reducing stress and regulating cortisol levels. However, it's best to avoid strenuous workouts close to bedtime, as they may interfere with sleep onset and quality.

  5. Create the Ideal Sleep Environment
    A cool, dark, and quiet bedroom supports better rest. Aim for a temperature between 65 to 70°F (18 to 21°C) and use tools like earplugs, white noise machines, or eye masks to block out disturbances.

The One Thing 95% of Healthcare Execs Agree On, Says HFMA CEO

The One Thing 95% of Healthcare Execs Agree On, Says HFMA CEO

This is a preview of the November 6 edition of Access Health—Tap here to get this newsletter delivered straight to your inbox. Good morning. Yesterday was the submission deadline for Rural Health Transformation applications, and some states have started releasing overviews of their plans. Here’s what we know so far (a special thanks to my colleague Lauren Giella for her reporting on this topic).

At the time of writing on Wednesday, three state governors had publicly unveiled their blueprints: North Dakota Governor Kelly Armstrong, Missouri Governor Mike Kehoe and Mississippi Governor Tate Reeves. Unsurprisingly, telehealth expansion and stronger workforce pipelines were core to their proposals.

But I did find another common thread throughout the states’ plans: They all called for some level of interoperability between health care stakeholders. Missouri aims to create a “unified, regional network” that will connect providers, public health agencies, at-home resources and digital health tools to expand access, according to Kehoe’s news release. Mississippi wants to build a “connected, data-driven network of emergency, clinical and community-based services,” Reeves said. And Armstrong outlined four strategic initiatives for his state, including “connecting technology, data and providers for a stronger North Dakota.”

A few weeks ago, on the heels of the Summit on the Future of Rural Health Care, I wrote about the skepticism that many health care executives expressed when asked about the $50 billion transformation fund. (If you missed it, you can check out that newsletter here.) I’ve come across a few recurring concerns: (1) that the plans will be too broad to effect real change, (2) that they’ll set up costly programs that won’t be sustainable once the cash infusions end and (3) that $50 billion is not nearly enough to offset the $1 trillion in Medicaid and CHIP cuts that hospitals are expecting in the next decade.

We don’t have every state’s plan yet, and the information we do have isn’t very detailed. But so far, those concerns I outlined above appear to be valid—especially when it comes to the sections on “connected networks.”

Health care IT executives know that data exchanges aren’t easy to build. Leaders spoke about this in depth at My healthy of life’s Digital Health Care Forum, chronicling privacy concerns, internal data silos and complex relationships among competitors. And those are concerns from well-funded health systems, which have more solid IT infrastructures than their rural, independent counterparts.

Plus, maintaining a connected network will undoubtedly take resources, and the fund only lasts five years. It is unclear how these projects will sustain themselves over the next few decades.

Fortunately, states won’t be working toward these goals on their own. This week, a coalition of health tech companies launched the Collaborative for Healthy Rural America, specifically designed to advance the Rural Health Transformation projects. The group intends to address access challenges through “shared infrastructure, unified data and modern technology,” and will work up an “AI-enabled interoperable operating platform” to help states carry out their visions, according to the Collaborative’s website and news release.

Founding members include Lumeris (primary care), Teladoc Health (virtual care), Nuna (an app with an AI “coach” for chronic disease patients), Deloitte (for data systems interoperability expertise), and Unite Us (a company that builds networks to coordinate care and improve communications between health care and human services organizations).

Plus, the Collaborative aims to improve access nationwide, not just in awarded states. Perhaps these companies, which are well-resourced and nationally scaled, could give some of the state-wide plans a helpful boost—and keep this entire endeavor from being a bust. We’ll know more when the winners are announced December 31, and as the funds are distributed in early 2026.

What stood out to you from the early Rural Health Transformation Fund proposals? Send me an email at a.kayser@newseek.com and let me know.

In Other News Major health care headlines from the week

My healthy of life will host a live webinar, “Traveler to Teammate: Becoming a Hospital Where Nurses Choose to Stay,” on Wednesday, November 19, at 2 p.m. Eastern.

My colleague Aman Kidwai will host the discussion with Dr. Regina Foley (Chief Nursing Executive and Chief Clinical Transformation and Integration Officer, Hackensack Meridian Health), David Rutherford (Senior Advisor, HR Transformation, OhioHealth) and Dr. Vikas Sinai (President of the Lown Institute). Learn more and register for free here. I hope to see you there!

Athenahealth announced an ambient scribing tool and a clinical copilot named Sage at its annual customer event on Tuesday. The new capabilities will begin user testing in the first half of 2026, at no additional charge to customers.

I spoke with the EHR vendor’s CEO, Bob Segert, about his decision to build these tools internally—and what it might mean for external solutions that currently live atop the platform. Get the scoop here.

Hospitals and health systems across the nation are rebranding. At least six organizations shared new names this week, with many of them symbolizing new visions.

BJC Health System in St. Louis is dropping the “system” from its name and adopting a new tagline (“Because every moment deserves exceptional care”). Franciscan Missionaries of Our Lady Health System in Louisiana will now be known as FMOL Health. CHI Memorial hospitals across Tennessee and Georgia will adopt the name of their parent company, Chicago-based CommonSpirit Health. The national senior living provider CareSouth Health System is rebranding across all its divisions and lines of business, launching an updated website and logo.

Some of the updates apply to recently acquired facilities. For example, Washington Regional Medical Center in Fayetteville, Arkansas, is renaming Physicians’ Specialty Hospital once it assumes operations of the facility on December 1. The new name will include “Washington Regional” ahead of the existing title. And HCA Healthcare has rebranded more than 35 care sites across Charleston, unifying them under the for-profit system’s name, according to The Summerville Journal Scene.

These announcements come as many health systems seek to create a more seamless health care experience for patients—and some look to form competitive brands that can go head-to-head with household names like Amazon and marketing wizards like Hims & Hers.

The government has been closed for more than a month, and anxieties are festering amid lingering policy questions—especially the fate of the Affordable Care Act (ACA) enhanced premium tax credits (APTCs).

On Monday, a pair of House Democrats and a pair of House Republicans released a bipartisan statement of principles, proposing a temporary two-year extension of the APTCs, among other reforms to prevent fraud and “ghost beneficiaries.” It’s not a guarantee, but it is a welcome signal of compromise.

Pulse Check Executive perspectives on key industry issues

Financial sustainability is a top concern for health system CEOs and CFOs. That’s why I sat down with Ann Jordan, president and CEO of the HFMA, for this week’s Pulse Check.

The HFMA (or the Healthcare Financial Management Association) is in a unique position. It’s a non-lobbying organization and expands beyond the traditional definition of a professional association because it speaks to a number of players rather than to a single trade, like nursing or cardiology. In other words, it occupies a “horizontal lane of an industry that is becoming increasingly dynamic and destabilized,” as Jordan put it.

Currently, the HFMA is focused on equipping members with insights to advance their organizations’ financial management and applying that acumen to guide strategy in the broader health care industry, Jordan said. To advance that goal, the HFMA recently launched the business initiative Vitalic Health, which focuses on convening stakeholders to discuss industrywide solutions. In mid-August, they launched a “Vitals Tracker” to rapidly assess the health of the health care system—and declared that it is in “serious condition.”

Here’s what Jordan told me about the new tool and the work to stabilize health systems’ finances.

Editor’s Note: Responses have been edited for length and clarity.

What are the main barriers to financial sustainability for hospitals and health systems right now, and how are you working to address them?

Point number one is understanding what we should look at in terms of financial sustainability and from what perspective. When your practice [is] horizontal [like the HFMA’s], should it be from the perspective of sustaining a business, a stakeholder group or the overall “greater system,” if you want to call it that, to advance health care generally to our communities?

When you talk about sustainability, one, naturally, is making sure that there is financial sustainability so that service can be delivered right, at the end of the day. If health systems and hospitals cannot stay open, health care is not going to be delivered. So that’s primal, that’s basic.

But this longer-term play in terms of financial sustainability and outcomes, there really has not been a meaningful and objective conversation on what that means, and that’s a little scary, given the fact we have a $5 trillion industry pushing upward to 20 percent [of the nation’s] GDP. So, part of this initiative underlying Vitalic Health and the tracker was, for the first time, to start identifying those measures and sub-measures, how they have interconnectivity and [whether they are] getting better or worse. It’s strange that that has not been done before at the macro level.

For me, in terms of what are we thinking about [when it comes to] how we become financially sustainable, we’re trying to educate and understand [that] ourselves, and we want the whole industry to help us.

Tell me a little bit more about the Vitals Tracker. As you were building this out, what did you find that is pertinent to call out?

When we began this initiative of Vitalic Health, we didn’t want to tell people what we were doing and why, because then they would bring bias to the table. So there was a whole working task force for about a year behind the scenes that looked into the components and elements of financial sustainability from the top lines in health care. That was done generatively, and that was purposeful. [We] gathered up a big vat of knowledge to begin with, starting with the question, do you believe the system is financially sustainable? Over 95 percent of that big group said “no.” And you can’t get experts to agree with that percentage on anything, right?

Then [we started] breaking down all the components: First of all, what matters from a macro-economic standpoint? Our intuition is to go mezzo, to go [are] organizations surviving? That’s not what this [tracker focuses on]. This is really looking at that dynamic part of the industry, year over year. Are we getting better or worse?

Of all these different factors that we’re hearing, there are two main buckets. One is the cost, the financial element, so we wrestled it as expenditures and affordability. The other is the outcome, which we’re calling functional longevity, and that takes into account not only the wellbeing of the population, but the social determinants of health that are interconnected with those outcomes. Think of it as your hardcore financial components and what’s going into it, and then the outcome side of them, breaking down all the measures and sub-measures that are seen as the most critical indicators, year over year.

The beauty of this tracker is we didn’t have to invent sub-measures on our own and collect data. There are enough first-class institutions that have been collecting this for a very, very, very long time. But how do we create a storytelling and a measurement device that can not only look backwards to allow us to learn, but proactively be turned forward to see how potential policy could impact us in the future?

You mentioned that 95 percent of experts said the health care system is not financially sustainable. But how many believe that it can become sustainable? Is there optimism there?

This is where you begin to have different views. If you go back to innovative disruption models—incumbents versus disruptors, builders versus fixers—we’re at that epicenter right now, and I think it’s going to be a combination.

So, do we think we can get there? We don’t have a choice. There’s too much on the line when you’re talking about health care. To serve our communities, we have to figure out a way to do it, and there are a lot of brilliant people out there looking at this.

But what needs to happen is a concerted effort so [that], at the end of the day, it’s not a few that survive; there is that interconnectivity across all stakeholders to go forward together. Right now, you see a lot of trends going around the country where different groups are incubating together, right? They’re forming these different initiatives, where stakeholders, maybe 10 or so, are coming together to look at how our model can be successful. Well, that’s going to just lead to bigger silos across the country.

How do we make sure there is that ongoing concern, so that overall, we’re delivering health care in a way that is available to all Americans? I believe there is optimism that it can become sustainable. I believe there are very divergent theories right now in terms of the incumbents versus the disruptors, on what that looks like.

From your perspective, what does a path to financial sustainability require? How do we get the entire health system on the same page?

We’re calling it solve-based convening. There needs to be a purposeful effort to bring together stakeholders that are aligned in purpose, [that] put down [their] own self-interest and bias. Look at the opportunity or the problem before you, and come together and solve it, because there’s so much of that collaboration that can occur, starting with payers and providers.

I think everyone can admit there’s a lot of administrative waste that’s driving up cost in health care. There are ways to solve that. An army of the willing, if you want to call it that, can do this in a safe, unbiased place.

Now, going back to HFMA, we’re non-money, we are apolitical, and we play in that horizontal plane, and that’s why we do feel it’s upon us to step forward at this time, to be one of those few organizations that can set a table and bring everyone to it. I truly believe, too, when your mission is leading the financial management of health care and the data is showing that your system is financially unsustainable…what obligation do we have to step up right now? That is the soul-searching that we had to do, and it’s critical for all the players in health care to do right now.

The other comment that I’ll say is, if we are the leaders of health care financial management [and] we don’t [take action], if not us, who? Eventually someone is going to have to lead this. We can either be active leaders and participants, or we can let someone else come that might have bias or different interests than our own.

What’s one thing that you would recommend all hospital and health system CFOs do to improve their organizations’ financial sustainability?

I want to thank them for their perseverance and resilience. They have been going through [a lot, from] the pandemic to this current environment of drastic change. Whether it be from AI and technology or the [Trump] administration, the role of the CFO in the United States health care realm has changed so much. And, man, are they stepping up to the task.

Number one, I want to recognize that [at a] higher level, they have become the ultimate risk managers, and to understand the consequences to the community of not making this work. That’s a lot of pressure. I want to give credit to those financial professionals leading us through all this change.

But in terms of what we need to be mindful of for sustainability, when you’re in a financial realm, it comes down to your payment model. All these different changes that are going on, we’re going to assess that a lot of it comes down to their payer mix, and a lot of it comes down to understanding risk pools.

So, as we’re going through all of this, be mindful [that] despite the fact we have all these things going on from supply chain, or going on from accelerating labor costs, the core comes down to that payment model—and that’s going to have to change, too.

The complexity of the CFO…think about it. They’re getting hit from all these macro-factors, [including rising] litigation costs. But to serve the patient, you gotta have that payment model intact.

It’s a very hard role right now. I definitely don’t have all the answers, but I think through the convening that we’re seeing, particularly of CFOs across the country, we’re trying very hard to figure it out.

C-Suite Shuffles Where health care leaders are coming and going

Dr. David Kirk has joined Regard as chief medical officer. He comes to the technology company—which specializes in proactive documentation solutions that review EHR data to recommend diagnoses—from WakeMed Health & Hospitals in Raleigh, North Carolina. He most recently served as the system’s chief clinical integration officer and executive medical director of critical care medicine and eICU.

AdventHealth named Todd Goodman its new CFO, just months after David Banks took the reins as president and CEO. Goodman has worked at the Altamonte Springs, Florida-based health system since 1991. He was promoted to CFO after serving as its executive vice president of finance. Read more at My healthy of life.

In Montgomery, Alabama, Jackson Hospital is assembling a power team to guide it through ongoing Chapter 11 bankruptcy proceedings— including a few former executives from the for-profit health system giant, HCA Healthcare. The 344-bed hospital appointed John Quinlivan as CEO. He spent nearly two decades at HCA Healthcare, overseeing hospitals in Florida and Georgia, and is charged with leading a restructuring to “avoid hospital closure,” according to a press release from Jackson Hospital.

The hospital also selected a new three-person board of trustees to help carry out the restructuring plan. That team includes Charles Evans (former president of HCA Healthcare’s Eastern Group), Jeff Crudele (former CFO of Allegheny Health Network) and Gary Murphey (a former CEO, CFO and chief restructuring officer at financially distressed companies in various industries, and the current managing director of Resurgence Financial Services). Click here for the full scoop from My healthy of life Senior Reporter Lauren Giella.

Executive Edge How health care execs are managing their own health

We’re heading into that end-of-year push, and many leaders are feeling the pressure to finish out 2025 strong and set expectations for 2026. But 10 tumultuous months behind us, it’s not uncommon to feel a little bit burnt out—and to feel like that holiday break can’t come soon enough.

This week, I asked Ellen Sexton, executive vice president and chief growth officer at Blue Shield of California, how she prioritizes herself while juggling the demands of health care leadership—especially as part of a team that serves 6 million members in the nation’s most populous state. Here’s what she told me.

Editor’s Note: Responses have been edited for length and clarity.

“Working in the health care industry means that every day, we are working for our members. Over the years, I’ve learned I have to take care of my own health and stay grounded to keep showing up fully for my team, my family and the members, partners and communities we serve. For me, that grounding comes from doing what I love, what brings me joy and by giving back to the community.

“In addition to making sure I schedule regular checkups (including dental and vision appointments) and follow preventive care recommendations, I find that how I spend my free time also impacts my overall health. After all, what we find joy in doing impacts our mood, our overall outlook on life and how we feel each day. I spend my free time listening to podcasts, reading (I highly recommend Poor Charlie’s Almanack, a collection of speeches and lessons encouraging lifelong learning), attending music festivals, walking my dog, Sugar, and doing anything that gives me an opportunity to get away from my desk and have fun.

“I also find that laughing with my family (I’m a proud hockey mom to a teenage son), friends and colleagues plays a big role in how I feel. I also strongly believe in giving back, and for me, that is expressed through service. It’s how I reconnect to the reason I chose this field in the first place: to support the whole person, including body, mind and spirit. That same belief guides my professional work, seeing our members as individuals with stories, families, and dreams.

“Giving back doesn’t always have to mean large-scale volunteerism. Sometimes it’s mentoring a colleague, checking in on a team member, or offering encouragement to a peer after a tough meeting. These seemingly small gestures create a ripple effect—lifting others while restoring my own sense of balance and purpose.

“Whether I’m volunteering with the Salvation Army, preparing for a Milwaukee Public Library Foundation Board of Directors meeting, or contributing to the Wisconsin School of Business External Advisory Board, these experiences remind me of the ‘why’ behind my work and the broader impact we can make when we lead with empathy.

“Through the years, I’ve learned that service is sustaining. It recharges my energy, deepens my empathy and reminds me that leading with heart is the best strategy for longevity, and thus, professional wellbeing.”

CEO Circle Insights from health care thought leaders around the world

Before you go, check out this profile of Dr. Bhana Chandrakamol, the director overseeing eight hospitals for the BPK Hospital Group in Thailand, and a member of My healthy of life’s CEO Circle. His interview traces his path from the “aha” moment that sparked his career in medicine, to the top of an innovative health system.

This is a preview of the November 6 edition of Access Health—Tap here to get this newsletter delivered straight to your inbox.

Related Articles Sutter Health Study Finds Ambient AI Can Ease Physicians Burnout Cigna Group Appoints New Chief Medical Officer States Submit Plans for Rural Health Transformation Funding Start your unlimited My healthy of lifetrial

Friends and Colleagues Raise Over $40K for UPMC Nurse Attacked by Patient

Friends and Colleagues Raise Over $40K for UPMC Nurse Attacked by Patient

Friends and Colleagues Raise Over $40K for UPMC Nurse Attacked by Patient

Travis Dunn's Recovery and the Call for Workplace Safety

Travis Dunn, a patient care technician at UPMC Altoona, has been released from the hospital after being severely injured in an attack by a patient. His recovery is now taking place at home, with continued support from his employer. "I am pleased to share that Travis Dunn, our patient care technician injured in the horrific attack on Saturday, has been released from the hospital and will be continuing his recovery at home with continued support from us," said Mike Corso, president of UPMC Altoona, in a statement.

Dunn was attacked in the emergency room, where he suffered a fractured skull, bleeding on the brain, and other serious injuries. The incident left him unconscious and required immediate medical attention. While recovering at UPMC Presbyterian Hospital in Pittsburgh, friends and colleagues began raising funds for his medical expenses. A GoFundMe page was created, which has raised over $40,000 — close to its $60,000 goal.

UPMC has assured that Dunn will receive full pay and benefits during his recovery and will not need to use any paid time off. Worker’s compensation is already in place, with a priority process for insurance claims and no out-of-pocket expenses for the employee.

A Growing Concern: Workplace Violence in Healthcare

The incident has sparked renewed calls for action from UPMC Altoona employees, who have long expressed concerns about the increasing violence in healthcare settings. Nurses and staff have reported daily incidents of verbal or physical assaults, with some describing the current situation as a crisis.

Jaime Balsamo, a nurse at UPMC Altoona, shared her frustration with Pittsburgh's Action News 4 reporter Sheldon Ingram. "We've been telling UPMC for years that we need more safety measures implemented, and we kept saying something bad is going to happen, and it did." Leann Opell, another nurse, echoed these sentiments, stating that the recent attack was the worst she had seen.

State Rep. Bridget Kosierowski, a co-sponsor of the Pennsylvania Healthcare Workplace Violence Prevention Act, has also spoken out. Although the bill passed the House in May, it has yet to move forward in the state Senate. Kosierowski highlighted the dangers faced by healthcare workers, citing incidents such as a man entering an intensive care unit with a gun and using it against staff.

Recommendations for Safer Workplaces

Employees at UPMC Altoona are urging administrators to take stronger steps to prevent future attacks. Some of the recommendations include:

  • A full and transparent investigation into the incident, including how and why current safety protocols failed, and what measures could have prevented it
  • A clear, enforced zero-tolerance policy for violence or threats against healthcare workers — by patients, visitors, or staff
  • Posted signs in every area of the hospital that assaulting a healthcare worker is a felony
  • Panic alarms installed in every patient care area
  • Metal detectors installed at all patient and visitor entry points
  • Enhanced security presence and faster response times, particularly in high-risk areas such as the ER, and during off-peak hours
  • Mandatory de-escalation and workplace safety training for all staff, with regular refreshers
  • Comprehensive support for affected employees, including paid leave, trauma counseling, and legal or workers’ compensation assistance as needed
  • Direct involvement of frontline employees and union representatives in developing and implementing safety improvements

UPMC's Response and Commitment to Safety

In response to the incident, UPMC Altoona released a statement emphasizing their commitment to a safe environment. "We are committed to maintaining a safe environment in which to give and receive care. When any member of our UPMC family is injured, our first priority is their health, recovery, and well-being."

The statement also highlighted the swift actions taken by UPMC Police and Emergency Department teams, who arrived within 47 seconds of the initial contact. The assailant was arrested and transferred to Blair County prison without bail. UPMC has also mentioned ongoing efforts to enhance safety, including advanced education and de-escalation training, active drills, panic buttons, secure rooms, and enhanced facility entrance technologies.

Recent Updates and Community Support

On November 5, 2025, UPMC Altoona President Mike Corso sent an internal email addressing the incident. He reiterated the organization’s commitment to safety and provided clarity on the situation. "We are incredibly grateful for the swift, courageous response of our UPMC Police and Emergency Department teams, whose actions prevented further harm and ensured our colleague received immediate care."

The email also emphasized the importance of supporting affected employees, with resources available through CISM-ASAP, LifeSolutions, and Spiritual Care teams.

Friends and coworkers continue to show their support for Travis Dunn, with many expressing hope for his full recovery. As the healthcare community grapples with the growing issue of workplace violence, the incident at UPMC Altoona serves as a reminder of the urgent need for systemic change.

Thursday, November 6, 2025

Legislature Advances 'Medical Aid in Dying' Bill for Governor's Review

Legislature Advances 'Medical Aid in Dying' Bill for Governor's Review

The Debate Over Medical Aid in Dying

CHICAGO, Ill. – A new bill has been passed by the Illinois legislature that could allow terminally ill adults to access life-ending medication prescribed by a physician. This legislation, known as Senate Bill 1950, is currently awaiting the governor’s signature and, if signed, would take effect after nine months. The measure has sparked a heated debate between advocates and opponents, with supporters emphasizing compassion and autonomy while critics raise concerns about potential risks and ethical implications.

How the Bill Was Passed

The bill was approved by the Senate with a vote of 30-27 on Oct. 31, following its passage in the House with a 63-42 vote in May. It now only needs the governor's approval to become law. Advocates believe this will provide terminally ill individuals with a sense of control over their final days, while opponents express worries about the impact on vulnerable populations and religious values.

Support from Advocates

Suzy Flack, an advocate from Chicago, has been a strong supporter of the bill. She pushed for it in memory of her son Andrew, who died of cancer in 2022. Andrew chose to live in California, where medical aid in dying options were available, and he experienced a peaceful death. Flack believes that the bill will bring comfort to others in similar situations.

"Inevitably, losing a child is the hardest thing that anyone could go through," Flack said. "I am just comforted every day by the way his death was so peaceful. He had some control over things."

What the Bill Includes

Senate Bill 1950 outlines specific requirements for eligibility. Patients must be Illinois residents aged 18 or older with a terminal illness that is expected to result in death within six months. Two physicians must confirm the diagnosis. A diagnosis of major depressive disorder alone does not qualify patients for the medication.

Patients must make both oral and written requests for aid in dying. Physicians are required to evaluate the patient’s mental capacity and assess for any signs of coercion or undue influence. They must also inform patients of alternative hospice care and pain management options before prescribing the medication.

Those who qualify must be able to self-administer the medication, and they retain the right to withdraw their request at any time or choose not to ingest the medication.

Death certificates for those who use the medication will list the cause of death as the underlying terminal disease, not suicide.

Safeguards and Concerns

Bill sponsor Linda Holmes, D-Aurora, emphasized that there are over 20 safeguards in place to prevent abuse or coercion. She cited Oregon’s 28-year history of medical aid in dying, noting that no substantiated cases of coercion or abuse have occurred there.

However, critics like Jil Tracy, R-Quincy, expressed concerns about the six-month prognosis window. She argued that medical advancements can sometimes extend a patient’s life beyond the initial diagnosis. Holmes responded that doctors typically overestimate patients’ prognoses and that most patients who qualify do not end up taking the medication.

Tracy also raised concerns about the potential for potent drugs to fall into the wrong hands, particularly among young people struggling with mental health issues.

Impact on Physicians and Culture

Sen. Steve McClure, R-Springfield, drew parallels between veterinarians and physicians, suggesting that providing end-of-life care could create a mental health crisis among medical professionals. The American Medical Association has long opposed physician-assisted aid in dying, calling it incompatible with the physician’s role as a healer.

The bill does not require physicians to prescribe the medication and protects them from legal consequences for either prescribing or refusing to do so.

"Nobody who doesn’t want to be involved is going to have to be involved," McCurdy said.

Opposing Views

Sen. Chris Balkema, R-Channahon, called the bill a "slippery slope" and warned against introducing a "culture of death" in Illinois. He pointed to other states that have expanded medical aid in dying options over time.

Advocates argue that the bill is not about promoting death but about giving agency to those who are already dying. Suzy Flack emphasized that the term "assisted suicide" is misleading and insulting to those who seek to live.

Compassion, Not Suicide

Sen. Laura Fine, D-Glenview, described the issue as one of choice and compassion. She stressed that the bill is not about suicide but about allowing terminally ill individuals to make decisions about their own lives.

Flack hopes Gov. JB Pritzker will sign the bill to provide agency to people like her son. At a recent news conference, Pritzker said he was reviewing the legislation and acknowledged the pain of those facing terminal illnesses.

"I know how terrible it is that someone who’s in the last six months of their life could be experiencing terrible pain and anguish," Pritzker said.

"You're Not Alone": Alzheimer's Association Hawaii Fights Stigma Around the Disease

"You're Not Alone": Alzheimer's Association Hawaii Fights Stigma Around the Disease

Families in Hawaii who are dealing with dementia are raising their voices to reduce the stigma surrounding this brain disease. For many, the journey is deeply personal and emotional.

LJ Duenas, executive director of the Alzheimer’s Association’s Hawaii chapter, shared how his grandfather, a scientist, experienced the decline associated with dementia. “There’s probably shame that he is feeling and experiencing,” Duenas said, highlighting the emotional toll on both patients and families.

Chris Lutz, a board member, echoed these sentiments. His wife, Maria, was diagnosed with younger onset Alzheimer’s last year. “It was incredibly scary and I think we both felt isolated and alone to some extent,” he said. “How do you deal with this new diagnosis? It has been a difficult journey, but it’s also been a rewarding one.”

“It is not anyone’s fault; it’s an illness,” he added. “The sooner that one can seek care, the better for the patient and the family.”

Maria Lutz emphasized the importance of socializing. “For me, it’s been really good just to be socializing as much as I can and that really makes a big difference,” she said.

As more people live longer, advocates stress the importance of awareness and education to help prevent or at least delay symptoms. Duenas explained that Alzheimer’s is the inability to retain new memory. “If you notice yourself or your loved one asking the same questions over and over again, or their inability to retain new memory, that’s one of the big signs we would encourage them to go and see their doctor.”

Screening is the first step. A new law effective January 1 requires patients 65 and older to be screened for dementia during their annual Medicare wellness visit. Advocates are also working to get blood test screenings covered.

Once diagnosed, families are encouraged to take advantage of free care consultations, support groups, education, caregiving training, adult day care, and a 24/7 helpline offered by nonprofits, the state, and counties. These resources provide financial assistance, allowing working caregivers to bring their loved ones to adult daycare facilities multiple times a week, offering significant relief.

Even accepting help from friends can make a big difference. “I would advise don’t suffer in silence, seek care, seek support,” Chris Lutz said. “We have a great friend network... so just about every single day we have something to keep Maria as active and engaged and social too.”

The Alzheimer’s Association is launching a statewide Hanai Memory Network to help triage or coordinate care in rural communities. This initiative is designed to bridge the gap between research, clinical care, and community support, ensuring families can access early diagnosis and coordinated care close to home, regardless of where they live or who their doctor is.

The nonprofit is also working with employers to include caregiving resources in work wellness programs and prevent worker burnout. The goal is to relieve some of the burden on 65,000 dementia family caregivers who provide 111 million hours of care worth $2.8 billion each year.

“Sometimes caregivers pass away before their loved one because of stress or reduced capacity to even care for their own selves, they’re concentrating so much on their loved one that their health is now being affected,” said Rowena Dagdag-Andaya with the Maui County Office on Aging and the state Department of Health’s Aging and Disability Resource Center.

“We’ve normalized forgetting with aging and Alzheimer’s needs to be looked at as a disease, like we look at diabetes and other chronic conditions, because it certainly is a public health crisis,” Duenas said.

The public can support families by joining the Walk to End Alzheimer’s fundraiser this Saturday at 8:30 a.m. on Magic Island at Ala Moana Regional Park. Maui will host its Alzheimer’s fundraising walk on Nov. 22 at 10 a.m. at Queen Ka’ahumanu Center. Maui County is also holding a Senior Fair on Nov. 15 at the Queen Ka’ahumanu Shopping Center from 10 a.m. to 2 p.m. Enjoy free fitness workshops and meet with representatives from over 65 community organizations and health agencies.

Here are more resources from the Alzheimer’s Association:

Caregiver Support Groups

Caregiver support groups offer comfort, reassurance, practical advice, and a community of people who are facing similar challenges. These meetings are for unpaid family members or friends caring for someone living with Alzheimer’s disease, another dementia, or a related disorder. People who attend should be comfortable and open to discussing their experience in a group setting. Support group details are updated regularly and subject to change. Please call or email the meeting contact before attending to confirm that days, times, and locations are accurate as listed. Please note that these groups are not appropriate for professionals or paid caregivers.

Oahu

  • Honolulu/Ala Moana/Kakaako (in-person): 1st Tuesday of the month, 5–6:30 p.m.
  • East Oahu (virtual): 2nd Monday of the month, 7–9 p.m.
  • Central (in-person): 3rd Monday of the month, 6:30–8 p.m. The Plaza at Pearl City, 1048 Kuala Street, Pearl City.

To register, please click here or contact Gina Plummer at 808.518.6648 or email geplummer@alz.org.

Hawaii Island

  • Waimea (in-person): 3rd Friday of the month, 2:30–4 p.m. Tutu’s House Waimea, 64-1032 Mamalahoa Hwy # 305, Waimea.
  • Hilo (in-person): 3rd Tuesday of the month, 1–2:30 p.m. Aging and Disability Resource Center, 1055 Kino`ole Street, Hilo.
  • Hawaii Island One (virtual): 1st Wednesday of the month, 10–11 a.m.
  • Hawaii Island Two (virtual): 3rd Thursday of the month, 4:30–5:30 p.m.

To register, please contact Nic Los Banos at nklosbanos@alz.org or call 808.518.6649.

Kauai

  • Central Sunset (in-person): 3rd Thursday of the month, 5:30–7 p.m. Regency at Puakea, 2130 Kaneka Street, Lihue.
  • Kauai and Maui County (virtual): 3rd Wednesday of the month, 12–1 p.m.
  • Westside (in-person): Last Thursday of the month, 5:30–7 p.m. Kauai Veterans Memorial Hospital - Conference Room AB, 4643 Waimea Canyon Drive, Waimea.
  • Eastside Afternoon (in-person): First Monday of the month, 12:30–2 p.m. Samuel Mahelona Memorial Hospital, 4800 Kawaihau Road, Kapaa.

Questions about any Kauai County Support Groups? Please contact Cindy Fowler at cfowler@alz.org or 808.518.6655.

Maui County

  • Maui and Kauai County (virtual): 3rd Wednesday of the month, 12–1 p.m.
  • Maui Island (in-person): 4th Thursday of the month, 4–5:30 p.m., Roselani Place, 88 South Papa Avenue, Kahului.

To register, please contact Cindy Fowler at cfowler@alz.org, or call 808.518.6655.

Caregiver County Services/Kupuna Care Program

The Hawaii Executive Office on Aging (EOA) is the designated lead state agency in the coordination of a statewide system of aging and family caregiver support services in the State of Hawaii, as authorized by federal and state laws. EOA works with the four county Area Agencies on Aging to enable older adults to live in their own home for as long as possible.

Through the Kupuna Care Program and Hawaii Aging and Disability Resource Center, caregivers can access county-specific support that may include adult day care, caregiver respite, home-delivered meals, personal care, and other services.

To learn more about the Kupuna Care Program and to request assistance, please visit the Hawaii Aging and Disability Resource Center’s website at hawaiiadrc.org or call 808.643.2372.

Early-stage Support Groups

Early-stage support groups intend to provide a safe and positive environment for individuals who have a physician’s diagnosis of Alzheimer’s disease, another dementia, or a related disorder. People who attend should be comfortable and open to discussing their diagnosis and symptoms in a group setting. Prescreening is required prior to enrollment. For more information, call the Alzheimer’s Association 24/7 Helpline at 800.272.3900.

ALZConnected Online Community

ALZConnected is a free online community designed for people living with dementia and those who care for them. Members can post questions about dementia-related issues, offer support, and create public and private groups around specific topics.

24/7 Helpline

Talk to a dementia expert with our free 24/7 Helpline at 800.272.3900. Help is available any time, day or night. Get confidential emotional support, crisis assistance, local resources, and information in over 200 languages.

Become a Support Group Facilitator

If you’re looking for a volunteer opportunity that gives you in-person contact with families that are coping with Alzheimer’s or other dementia, facilitating a support group might be a good fit for you. Support group facilitators help create a safe, open environment for caregivers or people living with dementia to share their feelings, thoughts, and experiences. Volunteer as a support group facilitator.