7 Signs Your Baby Is Tired

7 Signs Your Baby Is Tired

M Hasan    6:18 PM   

Understanding Overtired Babies and Their Sleep Challenges

Getting a baby to sleep can be challenging under normal circumstances, but when your little one is overtired, the task becomes even more difficult. Overtired babies often struggle to settle down for sleep, experience fragmented sleep, and wake up frequently during the night. This cycle of tiredness and overstimulation can lead to less sleep overall, making them even more exhausted and creating a continuous loop of fatigue.

Many parents find it frustrating to manage an overtired baby. One parent, plantlover84 from the What to Expect Community, shared her experience: “No matter what I do, [my baby] gets into this overtired pattern. It’s super frustrating because what should take 20 to 30 minutes to put her down, takes HOURS.” Understanding the signs of an overtired baby and learning how to address them can make a big difference in your baby's sleep habits.

Signs That Your Baby Is Overtired

Overtired babies may not always show obvious signs of exhaustion, but there are several indicators you can look out for. These include:

• Difficulty settling down for sleep: Your baby may resist bedtime or have trouble falling asleep.
• Short naps: Instead of taking full naps, they might only sleep for brief periods.
• Poor nighttime sleep: They may not get enough rest at night, leading to increased irritability.
• Crankiness or fussiness: An overtired baby is often more fussy and harder to soothe.
• Increased sensitivity to frustration or pain: They may become more easily upset or have difficulty handling discomfort.
• Meltdowns: Older babies may have more frequent emotional outbursts.
• Random sleep episodes: They might fall asleep at unexpected times, such as while eating or in the stroller.

These signs suggest that your baby is not getting enough rest and may need help establishing better sleep patterns.

Preventing Overtiredness in Your Baby

One of the best ways to prevent overtiredness is by ensuring your baby gets the right amount of sleep for their age. Here’s a general guideline:

• 1-month-old: Should get around 14 to 17 hours of sleep daily, including 8 to 9 hours at night and 7 to 9 hours in naps.
• 2-month-old: Needs about 12 to 16 hours of sleep, with 8 to 10 hours at night and 4 to 8 hours in naps.
• 3-month-old: Typically sleeps 9 to 10 hours at night and takes naps of 90 minutes to 2 hours.
• 4-month-old: Should get between 12 and 15 hours of sleep daily, with 10 to 11 hours at night and 3 to 4 hours in naps.
• 6-month-old: Can sleep 9 to 11 hours at night and has two longer daytime naps.

To help your baby avoid becoming overtired, watch for sleep cues like eye rubbing, yawning, or fussiness, and respond promptly by putting them down for a nap or bedtime. Establishing a consistent bedtime routine can also help signal to your baby that it’s time to sleep. Avoid overstimulating your baby before bed by keeping the environment calm and quiet.

Strategies for Getting an Overtired Baby to Sleep

Even if your baby is overtired, there are ways to help them fall asleep. Start by understanding their sleep patterns and try to put them down about 30 minutes earlier than usual. Each baby has a different wake window — the amount of time they can stay awake before needing sleep. Newborns typically stay alert for just a few minutes, while 3-month-olds may stay awake for up to two hours.

Following a familiar bedtime routine can also help. This might include feeding, a bath, reading a book, singing lullabies, and cuddling. Swaddling your baby and placing them in a dark, quiet room can also promote better sleep, though this is only recommended until around 8 weeks old.

Sleep Training and Overtired Babies

If your baby is constantly overtired, sleep training may not be effective. Experts recommend waiting until your baby is out of the newborn stage before starting sleep training. Instead, focus on helping your baby get the rest they need by maintaining a consistent sleep schedule, limiting stimulation before bedtime, and following a set bedtime routine.

An overtired baby may cry differently than a hungry or uncomfortable baby. Their cry may sound whiny, nasal, and continuous, often building in intensity. It may also be accompanied by other symptoms like difficulty settling down or frustration.

Creating Better Sleep Habits

Watching your baby closely and responding to their sleep cues is essential for preventing overtiredness. Ensuring they get enough daytime and nighttime sleep will go a long way in improving their overall sleep quality. Once your baby is back on track, you can look forward to more restful nights for everyone.

Top Camping Toys for Kids: Fun for Every Age!

Top Camping Toys for Kids: Fun for Every Age!

M Hasan    7:19 AM   

Why Camping Toys for Kids Matter

Camping is all about disconnecting from screens and reconnecting with nature and family. The right kids camping toys enhance this experience by encouraging outdoor play, fostering creativity, and promoting physical activity. They also keep kids engaged during downtime, making the trip enjoyable for everyone.

Whether you have toddlers, tweens, or teens, these fun camping toys cater to all ages and help create lasting memories.

Benefits of Camping Toys

• Encourage Outdoor Exploration: Toys like nature kits inspire kids to discover bugs, plants, and more, fostering a love for the great outdoors.
• Promote Active Play: Games like frisbee or football get kids moving and burning energy.
• Spark Imagination: Pretend-play sets, like camping-themed toys, let kids create their own adventures.
• Build Family Bonds: Group activities strengthen relationships through shared fun and laughter.

Essential Camping Toys for Kids: The Ultimate Checklist

Here’s a curated list of the best toys for camping to keep kids entertained and engaged, organized by category for easy scanning.

These outdoor camping toys are durable, portable, and perfect for a variety of camping environments, from forest sites to lakeside campgrounds.

Lighting Tools: Brighten Up the Night

Flashlights and lanterns are must-haves for nighttime adventures, ensuring safety and adding fun to evening activities.

• LED Flashlights: Compact, bright, and battery-efficient, perfect for kids exploring the campsite. Look for models with adjustable brightness and a sturdy clip for hands-free use.
• Camping Lanterns: Provide 360-degree illumination for group activities. Opt for lanterns with hooks or magnets for easy hanging in tents or on trees.
• Glow Sticks: Inexpensive and endlessly fun, glow sticks can be used for nighttime games like ring toss or hide-and-seek.

Classic Outdoor Games: Active Fun for All Ages

These timeless games are lightweight, easy to pack, and perfect for group play at the campsite.

• Football: A durable rubber or synthetic leather football is great for touch games or casual tossing.
• Frisbee: Lightweight and versatile, frisbees work on grass, sand, or open fields.
• Cornhole: Portable cornhole sets are a hit for all ages.
• Kites: Colorful kites soar high, offering a thrilling, creative activity.
• Slackline: A portable slackline challenges balance and coordination.

Water Toys: Splish-Splash Adventures

For campsites near lakes, rivers, or streams, water toys add refreshing fun to hot summer days.

• Water Guns: Perfect for friendly battles, these are a hit with kids of all ages.
• Reusable Water Balloons: Mess-free and eco-friendly, these provide hours of splashy fun.
• Portable Sandbox Set: Lightweight buckets, shovels, and dump trucks are great for digging in dirt or sand.
• Toy Fishing Poles: Practice casting or use real ones for fishing at water-rich sites.

Nature Exploration Kits: Spark Curiosity

Encourage kids to become forest detectives with these educational camping themed toys.

• Binoculars: Kid-friendly, smash-proof binoculars with large eyepieces are perfect for bird-watching or spotting wildlife.
• Magnifying Glass: Shatterproof magnifying glasses let kids examine leaves, bugs, and more.
• Bug Catching Kit: Includes nets, containers, and guidebooks to explore insects safely.
• Nature Scavenger Hunt Cards: Turn exploration into a game with themed task cards.

Card and Board Games: Downtime Entertainment

Perfect for rainy days or cozy campfire evenings, these games are compact and engaging.

• Card Games: Classics like Uno or Go Fish are easy to pack and play.
• Board Games: Yahtzee, Jenga, or themed versions like Mickey Mouse Yahtzee Jr. are family favorites.
• Winning Fingers Flashing Cube: An electronic memory game that challenges kids’ minds.

Walkie-Talkies: Adventure and Safety

Rugged walkie-talkies keep kids connected and add a layer of imaginative play.

• Kids’ Walkie-Talkies: Durable, short-range models are great for hikes or scavenger hunts.
• Long-Range Models: For larger campsites, opt for higher-powered versions.

Pretend Play Sets: Imaginative Adventures

These camping toys for toddlers and older kids spark creativity and mimic the camping experience.

• Camping Play Sets: Tents, toy campfires, and accessories let kids “camp” alongside you.
• Explorer Backpacks: Lightweight bags for carrying toys or nature finds.

Tips for Choosing and Using Camping Toys

To make your camping toys for kids a hit, consider these practical tips:

• Safety First: Ensure toys like slacklines or bug kits are used safely under supervision.
• Pack Light: Choose compact, lightweight toys to save space in your camping gear.
• Age-Appropriate Selection: Pick toys that match your kids’ ages and interests.
• Designate a Toy Bin: Use a clear plastic bin to keep sandy or muddy toys contained.
• Reserve Camping-Only Toys: Keep some toys exclusive to camping to make them special.
• Check Campsite Features: Tailor toys to the site—water toys for lakes, kites for open fields.
• Supervise Water Play: Always monitor kids near water for safety.
• Involve the Whole Family: Choose games like cornhole or water relays that everyone can enjoy.
• Eco-Friendly Choices: Opt for reusable glow sticks or durable toys to reduce waste.
• Weather Prep: Pack indoor games like cards for rainy days.

The best camping toys for kids turn a simple trip into a magical adventure. From soaring kites to glowing lanterns, these toys to take camping keep kids engaged, active, and connected to nature. Whether you’re at a national park or a local campground, these fun toys for camping ensure everyone has a blast.

IVF Journeys Go Public: Sharing Triumphs and Trials Online

IVF Journeys Go Public: Sharing Triumphs and Trials Online

M Hasan    4:00 PM   

The Journey of Sharing and Connection

After experiencing multiple pregnancy losses and several failed rounds of in vitro fertilization (IVF), Cheryl Dowling found herself in one of the most challenging periods of her life. She began sharing her journey on social media, hoping to find connection and a way to process her emotions. "Infertility was consuming every aspect of my life, yet no one around me seemed to see or understand the weight of it," she explains. Through her health platform and community, the IVF Warrior, Dowling has become a prominent figure in the infertility space. She has written a book titled Unspoken: The Unbearable Weight of Infertility and gained 127,000 Instagram followers.

When she started sharing her story, the response was overwhelming. "I quickly saw how many others were struggling, often feeling the same complicated mix of emotions," she says. Despite the global impact of infertility—where one in six people are affected, 10% to 20% of pregnancies end in miscarriage, and nearly 100,000 babies are born via IVF in the U.S. annually—there is still stigma attached to fertility treatments and infertility. This stigma, along with the silence that surrounds it, may be why many couples, especially women, are turning to social media and podcasting to find community, share their stories, and inspire others.

Why People Share Their Stories

For many, the decision to share their struggles with infertility stems from a deep need for connection and understanding. Demi Schweers, who documented her and her husband's journey through IVF, recalls starting the process organically. "I was in the thick of it, feeling alone, overwhelmed, and confused, and I realized if I’m feeling this way, there have to be others who are too," she says. The Schweerses now have over 2 million followers on TikTok, where they engage in frank conversations about the challenges of becoming parents.

Abbe Feder and her husband started the award-winning IVF podcast Maculate Conception. They didn’t initially plan to go public but found themselves documenting their experience as a way to cope with the emotional toll. "We had no intention of becoming voices in the infertility community, but as we kept documenting our experience, it became clear that others were craving exactly that: honesty, validation, and connection."

Actress Laura Orrico began sharing her journey a decade ago after her husband was diagnosed with brain cancer. He passed away in 2015, and she is now in her second trimester at 48 years old, thanks to IVF using her late husband’s sperm. Her choice to share this stage of her life came from a desire to connect with others facing similar challenges. "If I can help other women make this difficult decision, or inspire them to go through it alone, or at an older age, or after getting widowed, then it's worth it," she says.

The Challenges of Sharing

Sharing these personal experiences online comes with its own set of anxieties and pressures. Dowling admits she felt the pressure to constantly show up, even on days when she was struggling. "I thought I had to be strong for everyone else, even when I was breaking inside," she says. Over time, she learned to balance showing up with protecting her boundaries.

Orrico also worried about sharing more than she was comfortable with. "Getting through the first several weeks of appointments, I was nervous to post anything until I got to my next marker," she says. Parfet, who has shared her struggles with endometriosis and infertility, notes that finding the right care team helped her navigate the emotional challenges. "Our stories don’t need to be sanitized or made palatable to be worth sharing," she adds.

The Importance of Transparency

Sharing candid stories often means revealing aspects of the journey that were never expected. Feder recalls one of the hardest things they shared publicly: their experience with termination for medical reasons (TFMR), which is a clinical term for abortion. After years of failed IVF procedures, they became pregnant with three embryos. Due to serious health risks, they had to make the painful decision to reduce to two. "It was an abortion. And it was heartbreaking," she says.

The decision to share that part of their story was difficult, but it felt important to be transparent. "People need to understand that abortion is part of fertility care. That it’s not black-and-white. That it’s health care," Feder recalls her husband saying. "And he was right."

The Emotional Impact of Fertility Journeys

For many creators, IVF eventually leads to having a child, but some worry about sending the message that overcoming infertility is inevitable. Parfet, now a mother after years of trying, questions whether her voice is still relevant. "Now that I have a child, I sometimes wonder if my voice is still one people want or need to hear. I question whether my experience feels too far removed from the uncertainty so many are still living inside."

Schweers, now a mom of two, also worries about the impact of sharing moments of joy. "When I got pregnant or shared a moment of joy, I worried it might hurt someone who was still waiting for their turn. I never want anyone to feel like I’ve forgotten what it’s like to be in that place of waiting and longing."

A Cautionary Note

Dr. Iris Insogna of Columbia University Fertility Center notes that many of her patients mention IVF influencers and the positive impact they’ve had in reducing the stigma of fertility treatment. However, she cautions patients to interpret what they learn online carefully. "Not every journey is the same, and each individual will have a different path. Ultimately, decisions about medical care should be made between the patient and the provider, not based on information from social media."

Feder also reminds her followers that she is not a medical professional. "So many people are desperate for answers, they might follow influencers who aren’t medical experts and end up getting harmful or misleading advice," she says.

The Future of IVF Conversations

While the conversations around IVF continue to evolve, the costs associated with the procedures remain prohibitive for many. IVF is not universally covered by insurance, and in many cases, it remains highly politicized. Additionally, fertility care often overlooks the emotional toll of the treatments. "Clinics and media often focus on the physical treatments and outcomes, while the mental and emotional impact is still overlooked," says Dowling. "Many people, especially women, still feel blamed or judged for needing medical help to build their families."

Creating a platform for emotional care is at the heart of what many of these influencers do. "Mostly, it’s about making people feel less invisible," Parfet says about sharing her experience with both IVF and endometriosis.

As more people choose to share their journeys, the conversation around infertility continues to grow. For many, it’s about finding connection, reducing stigma, and helping others feel less alone. "Will this help someone feel less alone?" Schweers asks. "If the answer is yes, I try my best to be brave and share it."

Vista Careers: Lincoln Center for Family and Youth

Vista Careers: Lincoln Center for Family and Youth

M Hasan    12:17 PM   

About The Lincoln Center for Family and Youth

The Lincoln Center for Family and Youth, established in 1970, is a nonprofit organization that has grown into a dynamic social enterprise dedicated to improving the lives of individuals and communities. Based in Audubon, the center operates across multiple states, offering a wide range of services including K-12 alternative education, mental and behavioral health support, coaching, counseling, and trauma-informed training.

Collaboration is at the heart of the center's mission. It partners with school districts, universities, hospitals, law enforcement agencies, and other nonprofit organizations to provide comprehensive support and secure funding through federal and state grants. This commitment to partnership ensures that the center can offer impactful programs and services tailored to the needs of those it serves.

Community Counselor Position

The Community Counselor plays a vital role in delivering in-home individual, family, and group counseling services in the Norristown area, with a strong emphasis on trauma-informed care. The position involves working with clients facing various challenges, including parenting issues, therapy for children and teens, life skills development, supervised visitation, and intervention for drug and alcohol-related problems. Counselors also support individuals who have experienced physical, sexual, or emotional abuse.

Key responsibilities include providing counseling services in diverse settings such as offices, homes, and schools, adhering to specific policies and procedures, and advocating for clients with healthcare professionals, legal personnel, and service agencies. Counselors are also tasked with maintaining case records, assisting in program planning, and facilitating cooperation with community agencies and schools.

To be successful in this role, candidates must possess knowledge of multiple therapeutic modalities, including cognitive behavioral therapy, motivational interviewing, and trauma expertise. A minimum of an Associate’s Degree is preferred, along with at least two years of related experience, particularly in working with children, families, and individuals at risk for substance abuse.

Special Education Teacher Position

The Special Education Teacher position, located in Chester, offers a $5,000 sign-on bonus. This role involves working with students in grades 7-12 who have socioemotional and mental health needs, as well as learning disabilities. The teacher develops and delivers specialized instruction, evaluates student progress, and serves as the IEP Manager for assigned students.

Responsibilities include assessing student needs, developing teaching plans, and implementing instructional strategies that meet each student's unique requirements. Teachers must collaborate with other educators, counselors, and social workers to create a supportive learning environment. They are also responsible for managing IEPs, updating them throughout the school year, and communicating with parents, teachers, and administrators about student progress.

Ideal candidates should have excellent communication and relationship-building skills, the ability to work effectively in a team, and experience with IEP software. A Bachelor’s Degree and Pennsylvania Special Education Certification (for grades 7-12 or N-12) are required.

Math Teacher Position

The Math Teacher works with at-risk youth in grades 7-12 within an alternative school setting. This role requires flexibility to address the individualized instructional needs of students in a small classroom environment. The teacher must collaborate with other educators, special education staff, counselors, and social workers to support student growth.

Duties include developing a classroom culture that encourages active learning, using project-based learning techniques, leveraging technology to differentiate instruction, and creating a multi-sensory learning environment. Teachers are also responsible for monitoring student progress, maintaining accurate records, and building positive relationships with students and their families.

Candidates should have a Bachelor’s Degree and Pennsylvania Teaching Certification in the subject they teach. Strong communication skills, the ability to work in a team, and proficiency in Microsoft programs are essential for success in this role.

Explore Other Opportunities

The Lincoln Center for Family and Youth offers a variety of job openings across different roles and locations. These positions provide opportunities for professionals passionate about making a difference in the lives of individuals and communities. Whether you are interested in counseling, special education, or teaching, there is a place for you at the center. Explore all available positions and consider contributing your skills and expertise to this impactful organization.

Philadelphia Careers at Lincoln Center for Family and Youth

Philadelphia Careers at Lincoln Center for Family and Youth

M Hasan    12:17 PM   

Overview of The Lincoln Center for Family and Youth

Founded in 1970 by a behavioral health hospital, The Lincoln Center for Family and Youth (TLC) became a nonprofit organization in 1983. As an entrepreneurial social enterprise, TLC is dedicated to transforming lives and communities through various programs and services. Based in Audubon, the organization operates across multiple states, offering a wide range of educational and mental health support.

TLC provides K-12 alternative education, comprehensive mental and behavioral health services, coaching, counseling, and trauma-informed training. It collaborates with school districts, universities, hospitals, police departments, and other nonprofit organizations. These partnerships help secure federal and state grant funding, allowing TLC to expand its reach and impact.

Available Positions at The Lincoln Center for Family and Youth

Community Counselor

The Community Counselor plays a vital role in providing in-home individual, family, and group counseling services in the Norristown area. The focus is on trauma-informed care, addressing issues such as parenting challenges, therapy for young children and teens, life skills development, supervised visitation, and intervention for drug and alcohol-related problems.

Counselors are expected to work with a variety of assignments and integrate their efforts with other TLC programs and community services. They must be able to meet specific requirements for counseling positions, follow established policies and procedures, and advocate for individuals and families with healthcare professionals, legal personnel, and service agencies.

Key responsibilities include maintaining case records, assisting in program planning, facilitating inter-organizational cooperation, attending training sessions, and overseeing data gathering and reporting. Essential skills include knowledge of therapeutic modalities like CBT, motivational interviewing, trauma expertise, and substance abuse intervention. A minimum of an Associate’s Degree and two years of related experience are preferred.

Special Education Teacher

The Special Education Teacher position, based in Chester, offers a $5,000 sign-on bonus. This role involves working with students who have socioemotional and mental health needs or learning disabilities. The teacher develops and delivers specialized instruction, evaluates student progress, and manages IEPs (Individualized Educational Programs).

Responsibilities include working with students in grades 7-12, assessing student needs, planning teaching activities, and collaborating with educators, counselors, and social workers. The teacher must maintain a classroom environment conducive to academic and socioemotional growth while adhering to PA-mandated due process procedures.

Skills required include excellent communication, teamwork, knowledge of IEP software, and strong substance abuse intervention skills. A Bachelor’s Degree and Pennsylvania Special Education Certification (7-12 or N-12) are necessary.

Math Teacher

The Math Teacher provides academic instruction and socioemotional support to at-risk youth in grades 7-12 within an alternative school setting. The role emphasizes flexibility in meeting the individualized instructional needs of students in a small classroom environment.

Responsibilities include developing a classroom culture where the teacher acts as a facilitator, implementing lesson plans that encourage active learning, using technology to differentiate instruction, and promoting student wellness. The teacher must also maintain accurate records, build positive classroom communities, and participate in meetings with parents, counselors, and other staff.

Essential skills include excellent communication, teamwork, subject matter proficiency, and knowledge of Microsoft programs. A Bachelor’s Degree and Pennsylvania Teaching Certification in the subject taught are required.

Other Opportunities at The Lincoln Center for Family and Youth

In addition to the roles mentioned above, The Lincoln Center for Family and Youth offers a variety of other job openings. These positions provide opportunities to contribute to the organization's mission of supporting individuals and communities through education, mental health services, and community engagement. Prospective candidates can explore all available positions to find the best fit for their skills and career goals.

'Burned Out and Broken': Nurse Exposes Staffing Crisis at Children's Cancer Unit

'Burned Out and Broken': Nurse Exposes Staffing Crisis at Children's Cancer Unit

M Hasan    6:02 AM   

The Struggles of a Whistleblower in the Children’s Cancer Unit

Hannah Farrell, a former nurse at the Royal Belfast Hospital for Sick Children, has spoken out about her experience working in the Children's Cancer Unit. She resigned in 2019 due to overwhelming staff shortages and a lack of support from management. Farrell described the system as leaving her broken, disillusioned, and burnt out. She emphasized that the issues she faced were not new, but rather part of a long-standing problem that continued to affect the unit.

According to Farrell, maternity leave, long-term sickness, and career breaks were often not backfilled, leading to understaffing on the wards. This placed an immense burden on the remaining nurses, potentially impacting patient care. When a ward reaches crisis levels, the trust reportedly pulls nurses from other areas, which only provides a temporary solution and negatively affects other departments.

Farrell also shared her personal struggles with the emotional toll of her job. She was responsible for treating some of Northern Ireland’s sickest children, often dealing with the pain of a patient's death. However, she was not offered any professional counseling and had to pay for it herself. The Belfast Health Trust responded by stating that they provide individualized support through their occupational health services and encourage staff to raise concerns with their teams and line managers.

Despite the trust's statements, Farrell said that nothing has changed since she left five years ago. She expressed hope that speaking out would help other nurses who feel their voices are silenced by management. “The system took my fight, my joy, my empathy and compassion—there was nothing left to give,” she said. “I dreaded every shift because I didn’t know what I was going into, staffing-wise, or what the skill mix would be.”

Impact on Patients and Families

The Children’s Cancer Unit is the regional center where children in Northern Ireland receive treatment for cancer or complex blood disorders. Specialist cancer nurses are trained to administer treatments like chemotherapy. However, seven out of 12 specialist nurses are currently off work, which led to some treatment delays earlier this year. According to the trust, about five children were affected, but they have since received their treatment.

Parents of patients treated in the haematology and oncology wards have shared their experiences with the challenges faced by the nursing staff. David and Sara Watson, whose son Adam underwent treatment for acute myeloid leukaemia, highlighted the pressure on nurses. They noted that while the clinical service is world-class, staffing issues have been a persistent problem. Adam, who passed away in 2022, helped establish the B Positive charity to support families and provide counseling to nurses on the ward.

The Department of Health acknowledged the staffing challenges facing the Belfast Trust and recognized the efforts made to manage recent nurse staffing issues in paediatric haematology and oncology. They also noted assurances from the trust that service delivery is being closely monitored.

A System in Crisis

Caroline and Martin Smyth, whose son Theo was treated at the cancer unit in 2020, described how staff shortages impacted the wards. They mentioned that the 10-bed ward was often full, yet there was not always a full quota of staff, especially during weekends. The Belfast Trust stated that there are currently no nursing registrant vacancies at the Children’s Haematology Unit and that all nursing roles in the haematology and oncology departments have been reviewed. This allows the trust to utilize staff from other areas and bank staff to safely cover the service when needed.

Farrell, who still works as a nurse in the health service, said the unit is operating on the "fumes" of the nurses’ good nature. She described her last three overnight shifts as "horrendous," with too much responsibility placed on her shoulders. She oversaw a full ward of seriously-ill children, supported only by a bank and a junior nurse, which ultimately broke her.

She emphasized that the children and families deserved the highest level of care but felt she lacked the ability and support to deliver it. Farrell criticized the NHS for promoting an "it's OK to not be OK" attitude around mental health, yet expecting nurses to give more than they can. She still recalls the names and faces of the 56 children who died in her care, but never received any professional support.

Calls for Change

Parents of sick children continue to call for help with costs and better support for the nursing staff. The ongoing challenges at the Children’s Cancer Unit highlight a broader issue within the healthcare system. As the trust continues to address staffing issues, many believe that real change requires a deeper understanding of the skills and resources needed to properly run such a critical department.

Ohio Parents Fear Dying Before Their Child

Ohio Parents Fear Dying Before Their Child

M Hasan    11:25 AM   

A Life of Love, Care, and Uncertainty

Karen and Jeff Groff have spent nearly four decades reading the same children’s books to their son, Danny. At 39 years old, Danny stands 6 feet, 1 inch tall, but his developmental abilities are equivalent to those of a 2-year-old. He lives in Upper Arlington, Ohio, where he enjoys sitting between his parents on the couch, holding a stuffed Bert Muppet toy. When his mother reads “Curious George Rides a Bike,” he leans in and smiles when she whispers, “George got curious.”

Danny was diagnosed with Lennox-Gastaut syndrome, a rare and severe form of epilepsy that typically begins in early childhood. The condition causes frequent seizures, which can lead to brain damage, learning difficulties, and lifelong disabilities. According to the LGS Foundation, about 50,000 people in the U.S. and 1 million worldwide live with this condition. Danny experiences daily seizures, and Karen Groff said that managing his health is a constant challenge.

In addition to his epilepsy, Danny also has Type 1 diabetes, which limits his ability to participate in full-time adult day programs. His caregivers cannot manage his insulin needs, so he spends mornings at the program and the rest of his time at home with his parents.

Daily Routines and Emotional Struggles

Danny’s routine includes morning coffee, daily injections, medications, storytime, afternoon outings, and evenings watching “Wheel of Fortune.” He adores his 10-month-old niece, Cecelia, and his Buckeye-themed bedroom, filled with Ohio State University memorabilia. Despite his love for these simple pleasures, the Groffs know that their son’s future is uncertain.

As retired educators, Karen and Jeff face a daunting reality: they must plan for two possible outcomes—either they pass away before Danny or he passes away before them. “Our worst nightmare is that we lose him first,” Karen said. “And our worst nightmare is that we go first.”

When parents or caregivers are no longer able to provide care, the responsibility often falls to another family member or friend. Even if someone moves into a facility, someone still needs to oversee their care and finances. In the U.S., caregiving is becoming increasingly common, with a new study from AARP showing that nearly one in four adults is a caregiver.

The Groffs are currently planning three funerals: their own and Danny’s. “It’s a little overwhelming,” Karen admitted. “I can’t die.”

Navigating the Challenges of Rare Diseases

Parents of adult children with rare diseases often struggle with the ongoing care their children need. Limited research into these conditions leaves many families unsure how to plan for the future. According to the National Organization for Rare Disorders, its help line received nearly 135,000 requests for assistance in 2024, with at least 125 calls annually from parents seeking guidance on long-term care.

Some families opt for residential facilities, while others rely on a mix of family, friends, and paid caregivers for 24/7 in-home care. Both options can be costly. A 2020 report estimated that a household with an adult with a disability requires an additional $17,690 per year.

The Groffs are still figuring out their next steps. A 2018 University of Illinois study found that fewer than half of parents of children with disabilities made long-term plans for their child’s care. Many cited financial constraints, lack of resources, or emotional stress as barriers to planning.

“It’s normal to have these concerns,” said Jill Polander, vice president of patient services at the National Organization for Rare Disorders. “It’s OK to ask for help.”

The Role of Family and Community

For the Groffs, the most difficult part is the burden they feel they will place on their daughter, Jessica Hartman. As a special education preschool teacher, Hartman understands what her brother needs. She and her husband have been ready to take care of Danny since they married.

“We hate to put that burden on them,” Karen said. But Hartman doesn’t see her brother as a burden. “Everything Danny taught me I now use in my career,” she said.

However, the Groffs would prefer to avoid placing the daily responsibilities of caring for Danny on Hartman. They hope to secure a nursing staff to care for him in their home if they pass away before him. Hartman and other family members would still need to manage the caregivers and his finances.

Danny receives about $600 per month through Supplemental Security Income, but it’s not enough for him to live on. To maintain government benefits, people with disabilities must keep their assets under $2,000. For now, Hartman is set up to inherit everything her parents own, with the understanding that the money is for her brother’s care.

“We’re trying to be extremely frugal in retirement so that is untouched,” Karen said.

Building a Roadmap for Families

Caregivers often face an emotional toll, and many hesitate to discuss their challenges with family or friends. Rosellen Reif, a mental health counselor in North Carolina, works with families of people with disabilities and emphasizes the importance of open conversations.

“Parents have so much shame and fear around this topic. It's such a taboo, even in the disability world,” Reif said. She encourages families to make transitions early and involve loved ones in the process.

Reif also helps patients write letters to friends and family, ensuring that everyone is aligned on long-term care decisions. “We don’t want them to lose their parents and in the same week have to move into somewhere new,” she said.

For Karen Groff, community has been essential. After her son’s diagnosis, she found a Facebook group that offered support. “You can go on there any time of the day or night, ask a question, and someone will be up at night and get back to you,” she said. “And you need that sense that you are not alone.”

The Groffs are still looking for a new in-home nurse, but the nursing shortage has made it difficult. They expect the search to take at least six months.

A Focus on Quality of Life

Despite the challenges, the Groffs remain focused on making sure Danny is safe and happy. He is happiest when he’s surrounded by the people he loves, playing “Uncle Danny” to Hartman’s baby and laughing with his aunts and uncles at family gatherings.

“It’s all about quality of life at this point,” Karen said.

This story is part of USA TODAY’s The Cost of Care series, highlighting caregivers across the country.

CARE Court in California Faces Slow Start Amid Divided Reactions

CARE Court in California Faces Slow Start Amid Divided Reactions

M Hasan    8:53 AM   

Overview of California's CARE Court System

In 2023, California introduced a new court system designed to assist individuals experiencing mental health challenges, particularly those with schizophrenia or similar conditions. This initiative aims to connect these individuals with essential services through a voluntary but court-ordered treatment approach. The program, known as the Community, Assistance, Recovery and Empowerment (CARE) Court, is part of Governor Gavin Newsom’s broader plan to overhaul the state’s behavioral health system, which includes a significant investment of billions of dollars.

The CARE Court is intended to provide a structured and supportive framework for individuals who may not be able to manage their condition without additional help. It offers an alternative to more restrictive measures, emphasizing the importance of voluntary participation while ensuring that participants receive the necessary care and support.

Eligibility Criteria for the CARE Court Program

To qualify for the CARE Court program, individuals must meet specific criteria outlined by the system. These include:

• Age Requirement: Participants must be at least 18 years old.
• Diagnosis: Individuals must have a confirmed diagnosis of Schizophrenia Spectrum or Other Psychotic Disorders.
• Severity of Symptoms: The individual must exhibit severe and persistent symptoms that significantly interfere with their ability to perform daily activities. These symptoms may impact personal care, basic life functions, and overall independence.
• Lack of Stabilization: The person must not be stabilized through ongoing voluntary outpatient treatment. This means that previous attempts at managing their condition without court involvement have not been successful.
• Risk of Deterioration: There must be a clear indication that the individual is unlikely to survive safely or independently in the community. This could involve difficulties in maintaining personal safety, hygiene, nutrition, health, and necessary social relationships without supervision.
• Need for Treatment and Support: The individual requires ongoing services and support to prevent relapse or further deterioration of their condition.

Key Principles of the CARE Court

The CARE Court operates under several core principles aimed at ensuring that it serves as a beneficial and appropriate intervention for eligible individuals. One of the most important aspects is that participation in the CARE Court is considered the least restrictive alternative available. This means that the program is only used when other, less intrusive options have been exhausted or proven ineffective.

Additionally, the program is designed to offer a personalized approach to treatment. Each participant will likely benefit from engaging in a CARE plan or agreement tailored to their specific needs. These plans are developed with input from healthcare professionals and may include a combination of therapy, medication management, housing support, and other essential services.

Benefits of the CARE Court

By offering a structured and supportive environment, the CARE Court aims to improve outcomes for individuals with severe mental health conditions. The program emphasizes recovery and empowerment, helping participants regain control over their lives while receiving the necessary care. This approach not only benefits the individuals involved but also contributes to the broader community by reducing the burden on emergency services and promoting public safety.

Furthermore, the CARE Court aligns with the larger goal of transforming California’s behavioral health system into one that is more accessible, effective, and compassionate. By focusing on early intervention and long-term support, the program seeks to address the root causes of mental health crises and provide sustainable solutions for those in need.

Overall, the introduction of the CARE Court represents a significant step forward in addressing the complex challenges associated with mental health care. It provides a balanced approach that respects individual autonomy while ensuring that those who need help can access the resources they require.